For every message there are another several saying something similar, and each one matters so much:
I am so sorry for your diagnosis. I am a breast cancer buddy as well. At 34, with a one and a half year old, I was diagnosed with breast cancer. It was a total shock. I was too young! Lumpectomy. At the same time, my mother was dying of lung cancer. With my wig in place, I buried my mother in November 1997. After four rounds of chemo and six weeks of radiation, in January of 1998, my former husband had a terrible headache. That turned out out to be 2 aneurysms and subsequent discovery of an AVM. It was a dream, but it was also real. I have since divorced, lost my job as an art dealer for 20 years and had to redefine myself. Everyone has a story, sad or otherwise. I believe that experiences give one depth of character. I would like to share with you my experiences so that people can see that even though you walk through the shadow of death, that life can march on. I have started my own business, Anna Banana Arts and Crafts and have risen like a phoenix. You are not alone, as I'm sure you're finding out. You are part of a fellowship. Stay strong. I want to help.
I just read your blog. I am both saddened and shocked at the news. I will keep you in my prayers. Your situation hits home. This past year my girlfriend of ten years had breast cancer return after a two year hiatus only to have her right breast removed. She found out in May when she went to have her yearly mamagram. She had to get chemo treatments as well as a "port" installed because they have a hard time finding her veins. She had treatments biweekly. She lost the hair, bought a few wigs etc,etc. Just last week she had a pet scan (one of several) that showed the tissue/growth has shrunk to the point that she can stop treatment and get 10 small hits of radiation that should finish the job. I will feel better when it is all over. It has been rough. I had feelings of anger,shock,sadness and dispair and actually lost it when we got the news. Then I made a decison. I told my girlfriend that we can either stay upset or have a positive outlook no matter how tough it got. We chose the positive route which made a world of difference. Carol you really don't know me. I stumbled on your website 3/4 years ago and read you story and have followed along ever since. However following along the rocky road I feel that I know you enough to share the above information with you. I am sure you have a host of people to lean on however if you need to talk to someone let me know and my girlfriend will be more than happy to talk to you. I wish you well and wish there was more I could do.
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Carol, I read you every day. I had a big time scare myself a couple of years ago. (Prostate) Just know… I will be offering daily prayer … for you! I care about you …
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I am so sorry. These words are overwhelming when heard. I heard them in 1999 a month after my husband died. After going through all the prescribed procedures (of the time) . . . am still here. I firmly believe life works best with an enduring, fiesty spirit and feel that you have this. Thinking of you and will help in whatever way. Be strong.
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I am so sorry to hear about your diagnosis. I have a sister who at age 33 she is now 63 who had a benign tumor on the fifth nerve in the back of her brain which had to be removed. She survived. She also then got the bad news about breast cancer and had a mastectomy. Then again she got the bad news and had to have her second mastectomy. The bottom line, she is still alive. Yes it sucks" however it has been detected early. With all the people you know and all the support you will receive from friends, plus your tenacity to live, you will come through this. My thoughts and prayers are with you, Spencer and your family.
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I, too, was diagnosed off a routine mammogram with no visible or palpable lump during my monthly self-exams. Also, no history of breast cancer in my family. I'm the first. had the biopsy to confirm DCIS and then found the surgeon to do the lumpectomy with the hope that they could get all the cancerous cells and then i'd do radiation for 6 weeks. Three lumpectomies later, still no clear margins. At that point over half my breast tissue was gone so i had to have a mastectomy. No choice. After hearing the recurrence rate, knowing i'd have to be on tamoxifin for 5 years which i really didn't want to do, and knowing i'd have to have some sort of surgery on my healthy breast to make it look more like the new "perky" breast, i opted for the double mastectomy. Boy was i glad i did as when they looked at the tissue of my supposed healthy breast under the microscope, they found DCIS there too. It just hadn't shown up on the mammogram yet.
Anyway, that's the short version ... I am three years since my mastectomy and LOVE my young, perky, bra-less boobs!!! You may not even have to make the mastectomy decision as it is likely to be treated by the surgery and radiation, but for me the recurrence rate, the drugs, and the stress of wondering if every ache and pain is the cancer coming back was too much to handle. i just wanted them OFF!!!!!!!!
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I’d like to say something in light of your February 18th blog. In the sixteen years that I worked for Pacino I could count the number of people I wanted to remember on one hand. You were certainly one of them. You were genuine, kind, direct. You got things done. Your importance in this world is obvious but at times like these you must feel like a moving target. It’s another speed bump on the road. I’m pulling for you and will think about you every day. You will get past this and be back up-to-speed in no time. Of this I am sure.
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I want to call you to talk about your diagnosis. I also had DCIS and have the names of several surgeons that I consulted with. I had great results and no reoccurrence. I got it in 1999. Send your cell phone number.
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I just read your most recent entry dated 2/28. We've met a few times and I am a regular at the Q&A cafe.I am a neighbor and live a few blocks east.I was diagnosed with DCIS in 2003 at age 45. I subsequently had a single mastectomy and reconstruction of my right breast.I know you're scared. I felt like I had been hit by a truck and I was pretty damned scared, too. My children were barely 8 and 9 years old. My contact information is below.
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Spencer, as you said, needs support. My son, also an only child, went through a couple years of my husband's cancer and chemo. They survive!! You are very much in my thoughts ...
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As someone who annually dreads my visit to Washington Radiology and who has been called back for “another view” and a sonogram, my heart was in my throat while reading about your experience. I would have done the same thing you did—driving to Sterling, Hyattsville or Timbuktoo in order to see someone without delay for further testing. A colleague of mine was diagnosed many years ago with the same type of diagnosis you’ve received and she’s doing just fine today with no recurrence.
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first of all, holy shit. but thank goodness they caught it
early and it appears to be contained. as the wife of a (new) cancer
survivor and fellow mother of an only beloved son, i have nothing buy
empathy for you and best of wishes for a terrific outcome to a really
shitty situation. sounds like you are well on your way to being fine!
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I was sorry to learn that you are having to deal with the frightening burden of a breast cancer diagnosis. I don’t know if you’ve ever read Dr. Kushner’s helpful little book, “When Bad Things Happen to Good People” but that certainly came to mind as I read your news.
However, given all the positive vibrations you have been receiving from your fans (both seen and unknown) plus the excellent medical resources we are fortunate to have around Washington, the odds seem to be very good that you will be able to resume a high quality of life . . . and that “la belle poitrine” will still be one of your fine features. All good wishes to you for minimum downtime and a very positive, sustained recovery.
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Sorry to hear that you are about to join the sisterhood of breast cancer patients. Best of luck with the surgery -- think positive thoughts. I am a happy and grateful 15 year survivor.
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You have never met me... my wife sent me the link to your blog and to your post on your diagnosis of breast cancer. It moved both of us to tears. (She) was diagnosed with breast cancer in the fall of 2006. Our experience was very similar to yours. For us the cancer and resulting surgery hit when we were selling our house to move to a condo in the West End, where we now live. While the cloud never disappears, it does move. At first it is a thick fog at ground level that obscures most of life. Then it is a dark presence right overhead, but the rest of life is pretty much in focus. Now, after 4 years of clean checkups, the cloud is back somewhere over our shoulders, still there, but right now at a respectful distance. Before each exam we get a little anxious waiting to be told that the cloud will remain at that respectful distance. The intensity and length of the anxiety decreases over time. At least to date, our experience is about as good as it gets. We both hope that you have the same experience.
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Good luck Carol! I love your sense of spirit and humor. It keeps me going on my second episode with Shingles- they make you feel like you're frying in a spinning skillet.
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don’t know a lot about breast cancer – but only know from my own experience of unexpected news when our second child was born with down syndrome – whatever the unexpected message that comes can be devastating and scary – but through time, education and the support of family and friends you will be stronger and wiser. In my case – I took it as a message that this is something that I’m supposed to advocate for.
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Thank you, Carol. My son, George, who is 6, is a 3rd generation only child. He needs his Grandie just as Spencer needs you. I think her surgery will be on Wednesday. I wish you well, too. I feel like if you can succeed, we can succeed so I'm pulling for you more than you can know.
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Sorry to hear that you're part of the 'Big C group' of which i am also a member. ...my brother is a Neuro-radiologist, one of the best. You can email or snail mail your x-rays/scans to him for a second opinion. Let me know if you want to do that and i'll give you his info. My friend was diagnosed at 25 with aggressive stage 2 breast cancer. She is 10 yrs cancer free now. My best advice is rely on your girlfriends for emotional support, take up meditation and look into local organic vegetables. Cut down meat consumption & alcohol, except red wine. When i was diagnosed, i opted out of chemo/radiation and instead went vegetarian, with a balanced alkaline/acid diet. i'm 4 yrs cancer free.
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I'm so sorry, but it is called "getting older",like it or not. Guys have it too except they call it prostate cancer and I've been there, done that and after three years out and feeling pretty much a has-been. I have graduated to every 6 months testing and so far so good, and I keep telling myself that those really young guys with no legs and/or arms at Walter Reed would give anything to be "whole" like I am.
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While I had a similar experience, a few years ago, I was fortunate that it was not cancer. An irregularity, discovered as yours was, proceeded in similar fashion w/additional pictures and exploratory procedures. I was fortunate that it ended there, but I remember that overwhelming feeling of aloneness, worry, and also that resolve to be tough. I figured if I could get thru an unfaithful husband, a protracted divorce, raising 2 young children, etc., well, I thought I could bull through cancer if thats what it came down to. Fortunately, it did not. I relate to your fighting spirit and the words that you wrote. Stay tough, smart and funny!
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Breast cancer is not epidemic, but pandemic. You have prompted me to force myself to make my own appointment for a mammogram (it's been just over two years since the last) and there is breast and ovarian cancer in my family.
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As I told you in previous emails, my brother-in-law left my sister in a financial state similar to yours. Thus, I can relate a lot to that circumstance. Now, Breast Cancer which I can really relate to as I am a survivor. Luckily, it sounds as though you got a jump start on catching it. The ups and downs or drowning waves do come like hot flashes when you least expect them. It's a process and I am convinced that each process is unique. I'm still trying to figure out where that year went as I don't seem to remember much of it..
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You are so lucky to have your LA pen pal! I'm glad you laughed when you read his bit about "mistaken identity" from up above. It was extremely witty, but I was weeping. I cried because his immense kindness in telling you that you and your son deserve better than this touched me so deeply. Thanks for sharing what he wrote. I loved every bit of it.
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the word "protected" should always be modified by "seemingly." Trust yourself. Your west coast pen pal stuck just the right note. Much of it is random. But not all of it. Complicated and crooked. Been there.